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Coping with Tardive Dyskinesia
If you are diagnosed with Tardive Dyskinesia, understanding of the severity of Tardive Dyskinesia and living with the disfigurement often provokes a profound emotional response in the patient, family members, and friends. Denial, depression, a feeling of hopelessness, and fear are normal and usual reactions. No single response is either expected or unexpected.
A lack of understanding of what's in store and what's next should be met by thoughtful, straightforward, and frequent discussions between physician, neurologist, patient, and family. In addition, coordination between the physician, neurologist and occupational therapist must be taken into account.
An inability to work, tend to business affairs, care for one's family and interact with friends in the usual manner, embarrassment and a desire to stay at home all contribute to emotional distress. Thorough explanations and the plans for future may bring emotional relief as the patient focuses on the treatment ahead.
Family members or loved ones may have questions about alternative methods of treatment. It is best to speak directly with physicians regarding specific medical questions. Family members or loved ones should discuss any problems or reactions they may have. Nurses and other health professionals understand the complexity of emotions and special ongoing needs of those living with Tardive Dyskinesia.
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